sleepless in kansas city…

before surgeryJust over two hours. That’s how much sleep I got last night. I could blame daylight savings time, or the one cup of (caffeinated) coffee at 10:00 AM yesterday morning… but I think not. I was in full blown “mommy mode” last night. My brain was on total overload, and there was no “shuttin her down“…

My kids are almost 25. Adults.  I get it.  Kinda…

My daughter left town yesterday for business. Alone. Had to catch a plane, and then another plane, get a rental car and drive two hours to a place where she has never been.  A long day for her, an unsettling feeling for mama bear. She came over for dinner one night last week, and we figured out that because of travel conflicts, we will not see her for several WEEKS, even though she only lives about 25 minutes away. Gosh. I miss her already…

My son moved to Dallas last fall and started into a crazy busy  phase at work after the first of the year. Long, long, LONG hours… seven days/week. Ugh!!  After a  quick text back and forth with “Dad” last night (sports talk), he told his dad that he was gonna try to hit the sack… “not feeling the greatest“. The nonstop stress on his body was trying to catch up with him. “Tell Mom I love her…”  I’m sad.  He needs Mom’s homemade chicken soup…

And then there is my cousin’s daughter’s daughter (pictured above). Eleven years old. In heart surgery RIGHT NOW. My dad’s side of our family has a history of various “heart issues”. I am posting this today for two reasons… One is prayers. Starting right now (PLEASE!), for her successful surgery; and going forward, for her recovery. Secondly, I am attaching her mom’s facebook post from a month or so ago, in hopes that it might make a difference, maybe even save a life. Please feel free to share the following information, as I have not included any names.

“Warning: Longest post ever, please read. I usually never get very personal on here or do I ask for many favors but today I am doing both. We just recently found out that **** has an anomalous right coronary artery. What that means is the her right coronary artery is next to the left one. In order to be there it has to lay between her aorta and pulmonary artery. This is bad because during physical activity as those vessels fill up with blood her coronary artery can become compressed and shut off blood supply to her heart. This is one of the few things that cause sudden death in kids as they are playing sports. Because of this diagnosis we were faced with decision. We could choose not to do surgery but **** would not be able to engage in any physical activity for the rest of her life and probably have to take meds or do open heart surgery and make the opening bigger so the artery doesn’t become pinched. Neither option is good but after a discussion with the cardiologist and ****, we decided on surgery. While her chance of sudden death with the defect is low she is still at increased risk and a life of no physical activity for an 11 year old didn’t really seem feasible. The thought of surgery is scary as well. We are all very worried but thinking about what is going through ****’s head is extremely hard.
So here is where the favors come in. Yes, I have several favors. First, we are asking for prayers. Prayers and good thoughts for a successful surgery with a speedy and hopefully easy recovery. We are to expect 1-2 week hospital stay, 3-4 weeks off school and 6 months no activity. Those first few weeks will be rough and could use all the prayers we could get. Second, I recommend having your kids checked. This can be found with an ECHO which is basically an ultrasound of the heart. It doesn’t hurt. ****actually had an ECHO in 2011 and was told all okay but recently found out that the artery wasn’t easily visualized so I would specifically ask to have that checked. Most of those sudden death cases of kids on the football field, basketball court etc…could be prevented. Third, We are trying to come up with ideas to help make ****’s recovery easier. Special things that we could for her. We have a few but not sure if they will work so please message me if you can think of anything. We don’t have the surgery date scheduled yet but hoping for early March so she will be in the clear for the next school year. Besides that we Just want to get it over with as it is consuming all our thoughts. Thanks in advance for the prayers and positive thoughts we appreciate it.”

In the next couple of days, I will post a blog on what I have been up to lately. As for today, just one very simple, but powerful,  request. Your prayers…

thank you xo

One thought on “sleepless in kansas city…

  1. GREAT news!! Update from her mom…
    “UPDATE: Dr. **** just came out. Chest is closed. Surgery went as planned. Did well while on bypass. EKG normal. Procedure successful. Hopefully will be off the ventilator before leaving the OR. Anxious to hold her hand. Thanks for the prayers. We can’t tell you enough how much it means to us”
    Yay! Keep those prayers goin’ tho!! xoxo

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